Lilypie6th to 18th Ticker

Monday, September 17, 2007

Kyra Update

I hate waiting for other people!!!

In April Kyra's other half sister Tanya called and said her oldest daughter Madison had a CT scan in December that showed tumor on her pituitary gland. They checked her Prolactin level and it was really high. In April they tested Madison and found out she does have the gene for MENS type 1 like Doug did. I got a referal from Kyra's doctor in early June for Kyra to be tested. The only thing we had to wait for was a copy of the gene report from Madison's test. It is a lot cheaper and easier if you know what to look for. Doug and his dad Gordon were never actually tested so we had to wait for someone to show symptoms and be tested.

Tanya and I had not spoken since Doug and I split up in 2005. She said a lot of horrible things and told me to go to hell, so of course we haven't kept in touch. I decided for the good of the children to be a better person and help Tanya get her dad's medical records to help Madison.

Now I feel used.

The last time I spoke with Tanya she said she had to cancel their appointment in July because her husband Craig had changed jobs and they lost their insurance. The insurance was supposed to kick back in Aug 1st and she had an appointment to see the doctor. I have been calling her off and on for the last month and a half and she won't answer the phone. They don't have an answering machine but I know they have caller id. One time Craig did answer the phone but he said she had gone to the store.

Chelsea and Aaron went to visit in July. Chelsea is going to have the test done because she has had some odd problems that could be related. She took a form with her for Tanya to sign. Tanya still hasn't sent it back. She doesn't have to give it to the doctor. Chelsea's doctor can request the information if she signs it. For some reason she is being uncooperative.

In April Kyra will be old enough to have her prolactin checked and have a CT scan. With the way Tanya's being. We might have to wait for April.

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