Kyra's sister Tanya finally signed a release for us to get Madison's medical test results. Children's Hospital called last Thursday to say they had received the signed form so they were going to request the records.
Now they have to wait for the results to come and check to see if the gene actually causes the disease. If it is only a variant they won't test Kyra.
If it is then we have to get permission from the insurance company to do the testing. God only knows how long that will take. Luckily it will only cost $350 if they don't approve it, but they should. Then we have to schedule the testing, which we should be able to do as a walk in. We'll have to make an appointment for the results to be read. It will probably take 6 to 8 weeks for them to do the test. Hopefully it will be sooner since they'll know what they're looking for.
Usually, I'm an optimist, but not with insurance companies. Her 5th birthday is in April. She'll probably have her screenings protocol complete (blood test for prolactin and CAT scan) before we get her insurance approved and the gene testing back.
No comments:
Post a Comment