What can I say. Life can get so hectic. It's been a while since I've posted So much has happened I don't know where to start. Part of my problem is that for Christmas we got a Nintendo Wii and I have been spending too much of my very little free time playing Harry Potter. I've beaten Voldemort but I don't know if I'll ever finish the game. There are different tasks you have to do in each section of the castle and I can't find them all. I need to check online to see if they have a walk thru. Also for Christmas we got an electric fire place and a HD DVD.
For my birthday I got a bicycle. Don't laugh. I have every intention of using it. For one it needs to get a whole lot warmer. For two, I need to get a child trailer so I can take Kyra and Brandon with me. Then we need to get James and Taylor one so we can ride together.
We went to Children's Hospital on 1/11 to have Kyra's genetic testing done. They used a little brush to "tickle" the sides of her mouth to get a skin sample. The results could take two to four weeks. We made a follow up appointment for 2/12 but they call and rescheduled it for 2/21. Great, I really want wait even longer. I'm so scared I can't think straight. The morning we went I woke up at 5 am and couldn't go back to sleep. I keep telling myself that she doesn't have it. I have to think positive. We did find out what the mutation is. Here, let me sound knowledgeable:
MEN 1 is a single base change of G to C in the +3 splice donor site of intron 7.
or,
IVS7+3 G>C
or,
c1049+3 G>C
HUH?
Sunday, January 20, 2008
Sunday, December 16, 2007
Food Poisoning?
Kyra might have had food poisoning.
The other night we ate dinner with James. We picked him up and went to McDonalds drive thru and ate in the car. Brandon thought it was cute to throw his food in the floor but I thought I picked them all up.
I was wrong.
Thursday I picked Kyra up from preschool and she was talking about eating a chicken nugget. I looked in the mirror and she was holding one from the other day. I told her not to eat it but she said she already had. The one in her hand hadn't been bitten. I thought I stopped her in time. I told her she would get sick if she ate old food.
She started throwing up at 7:30 that night. In all she threw up 8 times. Not a fun weekend.
She is now afraid to eat. She hasn't thrown up since Friday night but she has barely eaten anything since then. She is existing on Gatorade. I finally got her to eat some chicken noodle soup tonight.
She won't even eat sweets! She's got to be sick!
The other night we ate dinner with James. We picked him up and went to McDonalds drive thru and ate in the car. Brandon thought it was cute to throw his food in the floor but I thought I picked them all up.
I was wrong.
Thursday I picked Kyra up from preschool and she was talking about eating a chicken nugget. I looked in the mirror and she was holding one from the other day. I told her not to eat it but she said she already had. The one in her hand hadn't been bitten. I thought I stopped her in time. I told her she would get sick if she ate old food.
She started throwing up at 7:30 that night. In all she threw up 8 times. Not a fun weekend.
She is now afraid to eat. She hasn't thrown up since Friday night but she has barely eaten anything since then. She is existing on Gatorade. I finally got her to eat some chicken noodle soup tonight.
She won't even eat sweets! She's got to be sick!
Circuit City SUCKS!!!
My DVDs aren't coming. My cheap, wonderful House DVDs aren't coming.
Sob, sniff.
The email I received said I should receive my order between Dec. 4th and Dec. 12. When I didn't receive them on the 12th I called 800thecity. The nice woman was completely unhelpful. They didn't have a tracking number from where it had reached the USPS, but it had been 15 days so they must have it by now. She said I should just call the post office and ask them if they knew where my package was. I pointed out that without the tracking number they wouldn't be able to track my package.
I asked them if I could just go to the local store and pick my DVDs there but for some reason there is a difference between corporate and regional and it's not the same and no I can't.
She said the only thing they could do is offer me a refund so I hung up and called the local store. I spoke with a manager who said I should wait a few more days (I guess 15 isn't enough) and if I didn't receive them by Friday I should call back. I called back on Saturday but he was too busy to come to the phone so I left a message. He never called back. I called today and he said that there is a difference between corporate and regional, he doesn't know why, but that's the way it is. He can't just give me my DVDs that I ordered. He did finally agree to sell me his DVDs for the $12.99. He wasn't sure if he had season 1 in stock but he could order it in special for me. I had to call the 800 # to get my refund and I'll go to Circuit City tomorrow to buy my DVDs.
After all this trouble it wouldn't kill them to just give me the freaking things.
Sob, sniff.
The email I received said I should receive my order between Dec. 4th and Dec. 12. When I didn't receive them on the 12th I called 800thecity. The nice woman was completely unhelpful. They didn't have a tracking number from where it had reached the USPS, but it had been 15 days so they must have it by now. She said I should just call the post office and ask them if they knew where my package was. I pointed out that without the tracking number they wouldn't be able to track my package.
I asked them if I could just go to the local store and pick my DVDs there but for some reason there is a difference between corporate and regional and it's not the same and no I can't.
She said the only thing they could do is offer me a refund so I hung up and called the local store. I spoke with a manager who said I should wait a few more days (I guess 15 isn't enough) and if I didn't receive them by Friday I should call back. I called back on Saturday but he was too busy to come to the phone so I left a message. He never called back. I called today and he said that there is a difference between corporate and regional, he doesn't know why, but that's the way it is. He can't just give me my DVDs that I ordered. He did finally agree to sell me his DVDs for the $12.99. He wasn't sure if he had season 1 in stock but he could order it in special for me. I had to call the 800 # to get my refund and I'll go to Circuit City tomorrow to buy my DVDs.
After all this trouble it wouldn't kill them to just give me the freaking things.
Sunday, December 9, 2007
I'm Back
It seems like tons of stuff is happening but nothing is getting accomplished. I still haven't heard from Children's Hospital about testing Kyra, I still haven't got my "House" dvds and I still don't know about moving yet. I talked to Dad the other day and he's moved in with Sherri and Chris. I feel bad that Sherri has to take care of him but even if I was there he'd probably still be with Sherri. A large part of me wants to be there to help. A small part is selfish and says "been there, done that". That is not why we aren't in Oklahoma right now. I'm actually really home sick. I love Washington, but I don't think I would get paid what I make now in Oklahoma. But I miss the people in Oklahoma.
You'd make it a lot easier on me if all of you just moved up here. I'm worth it, right!
James has applied for the Assistant Manager in training at Wal-Mart at two stores in Washington and pretty much all of the stores in OKC. I so hope he gets hired in OKC. If he doesn't get the promotion then he would have to step down as a supervisor to move. For some reason it is really hard to transfer as a supervisor. Something about hiring from within.
If he does get the promotion we could end up moving in a matter of weeks instead of months. Keep your fingers crossed.
You'd make it a lot easier on me if all of you just moved up here. I'm worth it, right!
James has applied for the Assistant Manager in training at Wal-Mart at two stores in Washington and pretty much all of the stores in OKC. I so hope he gets hired in OKC. If he doesn't get the promotion then he would have to step down as a supervisor to move. For some reason it is really hard to transfer as a supervisor. Something about hiring from within.
If he does get the promotion we could end up moving in a matter of weeks instead of months. Keep your fingers crossed.
Friday, November 23, 2007
I'm Such An Idiot
There, you now have it in writing.
Mom has gotten me addicted to the show House. When she was here in April we watched it constantly. I watch it every chance I get. Mom was going to let me borrow hers since I've never seen season 1 or most of season 2, but it hasn't happened yet. I've looked longingly at the previous season when I shop at Wal-Mart, but seasons 1 and 2 are still $46 each.
I don't spend money on myself if I can help it. Even when we have extra (like, when does that ever happen), I'll spend it on the kids or James.
This is not why I'm an idiot.
Black Friday. The biggest shopping day of the year. Yep, you guessed it. Circuit City has Season 1 & 2 for $12.99 each. OMG, my heart started racing. Luckily this wasn't one of those 5 hour sales. Who is going to rush out and buy up House first thing Friday morning?
EVERYONE!!!!!!
Circuit City and Best Buy were both out. Sob! Target was out but they had a rain check for $14.98 each. Not my $12.99, but close enough.
I can only blame my sleep deprived mind. I had a 3 hour nap yesterday but only 2 hours sleep before I went to work. That could cause it, right?
I just went online to circuitcity.com and they have both of them in-stock for $12.99 each. With free shipping since it's over $24. I should receive them between 12/4 and 12/11.
I'm such an idiot.
Mom has gotten me addicted to the show House. When she was here in April we watched it constantly. I watch it every chance I get. Mom was going to let me borrow hers since I've never seen season 1 or most of season 2, but it hasn't happened yet. I've looked longingly at the previous season when I shop at Wal-Mart, but seasons 1 and 2 are still $46 each.
I don't spend money on myself if I can help it. Even when we have extra (like, when does that ever happen), I'll spend it on the kids or James.
This is not why I'm an idiot.
Black Friday. The biggest shopping day of the year. Yep, you guessed it. Circuit City has Season 1 & 2 for $12.99 each. OMG, my heart started racing. Luckily this wasn't one of those 5 hour sales. Who is going to rush out and buy up House first thing Friday morning?
EVERYONE!!!!!!
Circuit City and Best Buy were both out. Sob! Target was out but they had a rain check for $14.98 each. Not my $12.99, but close enough.
I can only blame my sleep deprived mind. I had a 3 hour nap yesterday but only 2 hours sleep before I went to work. That could cause it, right?
I just went online to circuitcity.com and they have both of them in-stock for $12.99 each. With free shipping since it's over $24. I should receive them between 12/4 and 12/11.
I'm such an idiot.
Wednesday, November 21, 2007
It's About Time
Kyra's sister Tanya finally signed a release for us to get Madison's medical test results. Children's Hospital called last Thursday to say they had received the signed form so they were going to request the records.
Now they have to wait for the results to come and check to see if the gene actually causes the disease. If it is only a variant they won't test Kyra.
If it is then we have to get permission from the insurance company to do the testing. God only knows how long that will take. Luckily it will only cost $350 if they don't approve it, but they should. Then we have to schedule the testing, which we should be able to do as a walk in. We'll have to make an appointment for the results to be read. It will probably take 6 to 8 weeks for them to do the test. Hopefully it will be sooner since they'll know what they're looking for.
Usually, I'm an optimist, but not with insurance companies. Her 5th birthday is in April. She'll probably have her screenings protocol complete (blood test for prolactin and CAT scan) before we get her insurance approved and the gene testing back.
Now they have to wait for the results to come and check to see if the gene actually causes the disease. If it is only a variant they won't test Kyra.
If it is then we have to get permission from the insurance company to do the testing. God only knows how long that will take. Luckily it will only cost $350 if they don't approve it, but they should. Then we have to schedule the testing, which we should be able to do as a walk in. We'll have to make an appointment for the results to be read. It will probably take 6 to 8 weeks for them to do the test. Hopefully it will be sooner since they'll know what they're looking for.
Usually, I'm an optimist, but not with insurance companies. Her 5th birthday is in April. She'll probably have her screenings protocol complete (blood test for prolactin and CAT scan) before we get her insurance approved and the gene testing back.
Life Has Been Crazy
It seems I haven't had time to do anything lately. Especially go online. Right now I'm working from 2 am until 10:30 am. Believe me, I know what you're thinking. It's actually harder than you think. Actually it's mostly not that bad. I get to work all by myself except for like two hours of my day. The problem is that I'm addicted to a couple of shows that come on at 9 pm Pacific time. That doesn't give me a lot of sleep before I wake up at 1 am.
The reason I'm doing this is because James is killing himself working overtime at Wal-Mart. Last week he had 20 hours of overtime. This week he'll get his 8 hours of holiday, plus 10 hours of overtime. This is basically going to be our Christmas fund. He also gets a quarterly bonus that we should get in December.
I feel bad that I can't work extra also, but for one, there aren't enough hours in the day. We don't have a babysitter and the kids aren't in daycare. Two, I'm not allowed to have overtime. I usually take a nap while Brandon is sleeping and he's to active for me to be online while he's running around. I'll have to try harder to post more ofter.
The reason I'm doing this is because James is killing himself working overtime at Wal-Mart. Last week he had 20 hours of overtime. This week he'll get his 8 hours of holiday, plus 10 hours of overtime. This is basically going to be our Christmas fund. He also gets a quarterly bonus that we should get in December.
I feel bad that I can't work extra also, but for one, there aren't enough hours in the day. We don't have a babysitter and the kids aren't in daycare. Two, I'm not allowed to have overtime. I usually take a nap while Brandon is sleeping and he's to active for me to be online while he's running around. I'll have to try harder to post more ofter.
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